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Flexible Schedule
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Virtual Opportunity
We are looking for a motivated, talented volunteer to join RGI as a member of the grant writing team. The Grant Writer will be responsible for researching, writing, and submitting grant proposals to secure funding for our large language model (LLM) enhanced genomics analysis project. In addition to researching and writing grants, you will help oversee the overall grant management process by tracking reporting deadlines and ensuring compliance with funding requirements. This role requires excellent writing skills, a deep understanding of the grant application process, and the ability to articulate the significance and impact of our project. This position will report to the VP of Finance and work with the Project Lead, researchers, and development team to identify funding opportunities and submit compelling proposals. You will work remotely and on your own schedule. Responsibilities Research and identify potential grant opportunities from foundations, government agencies, and other funding sources Write, edit, and submit high-quality grant proposals, including narratives, budgets, and supporting documentation Collaborate with professionals across RGI to gather necessary information and data for proposals Ensure all grant applications comply with funder guidelines and requirements Maintain a calendar of grant deadlines and ensure timely submission of all proposals Track and report on the status of submitted proposals and funding received Build and maintain relationships with grant-making organizations and funders Assist with other fundraising and development activities as needed Qualifications Proven experience in grant writing and securing funding for nonprofit or research projects Exceptional writing, editing, and proofreading skills Advanced research skills and the ability to identify relevant, actionable grant opportunities Ability to understand and communicate complex scientific and technical concepts to a general audience Detail-oriented with the ability to ensure compliance with the terms and requirements of funding sources Ability to improve the grant proposal process by anticipating potential objections and incorporating feedback Ability to work independently and collaboratively within a multidisciplinary team Proficiency in Microsoft Office Suite and grant management software Preferred Qualifications Experience in the healthcare, biotechnology, and/or life science space Familiarity with the grant application processes of foundations and government agencies Knowledge of budget preparation and financial reporting for grant proposals This volunteer position is highly rewarding as professionals can utilize their grant writing experience to improve the lives of individuals living with rare diseases.
Date Posted: 2024-10-15
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Flexible Schedule
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Virtual Opportunity
Work remotely with talented peers on a rewarding, non-profit program as part of Rare Genomics Institute’s marketing team. Engage with Rare Genomics’ social media community on Facebook, X, LinkedIn, and Instagram platforms to facilitate the exchange of conversation with our followers and strengthen interest in Rare Genomics’ various philanthropic programs. This role will reach out to disease community members who are our social media followers to promote active participation, post announcements and news links, and assist in responding to social media inquiries or messages to RareShare’s online support mailbox. As a RG Marketing Engagement Specialist you will work with the marketing team to be a liaison to rare disease patients and families and other non-profit rare disease organizations online. You will seek to build rich, meaningful relationships with the global rare disease audience through our nonprofit’s social media accounts and improve Rare Genomics’ social media presence and following. Position Responsibilities: Engage actively on social media sites with account followers and other rare disease accounts. Increase Rare Genomics’ social media’s following and presence online. Manage outbound and inbound user communication; address feedback and inquiries and become a trusted companion to the Rare Genomics’ patient community. Develop and execute marketing strategies that improve our partnerships and communications with other rare disease non-profit organizations online. Develop innovative strategies to drive traffic to RareShare platform. Attend weekly evening team teleconference call (Tuesdays, 9:00-10:00 PM EST). Stay informed about new sites and trends in how people get information. Desired Skills and Experience: A degree in marketing/communications, business management, biomedical science or a related discipline are preferred. Knowledgeable in navigating social media sites. Excellent organizational skills and ability to manage multiple projects efficiently. Excellent oral and written communication skills for effective communication to clients, internal staff and the management team. Ability to demonstrate tact, diplomacy and initiative when working with others. Passion for learning and serving rare disease communities. Able to thrive in a fast-paced, self-starter environment. Dependable in serving as a regular spokesperson for the organization over a sustained period of time.
Date Posted: 2024-10-07
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Flexible Schedule
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Virtual Opportunity
Contribute to your community while using your professional expertise, and work with talented peers in a rewarding, volunteer-based environment! The Rare Genomics Institute (RG) is a nonprofit organization dedicated to helping rare disease patients find hope for a cure. The Copywriter will write marketing and promotional copy for print and digital media: including advertising, direct marketing, flyers and brochures, e-mails, and social media posts. This volunteer position will also write and edit feature stories, edit and review copy to meet brand standards and tone-of-voice guidelines, manage content calendar across multiple channels, and collaborate with in-house design team to develop concepts and campaigns. Responsibilities: Plays a key role in content development across all media, including digital and print deliverables. Collaborates with graphic design team on campaign concept development Works closely with department and division members and coordinates deliverables with project managers. Presents copy to teams and internal clients for approval, negotiates changes, and corrects and revises copy until approved. Serves as copy editor for copy submissions from other internal departments Proofreads print and digital deliverables. Qualifications: BA/BS in marketing, communications, public relations or related field required. Experience, with relevant writing samples to demonstrate proficiency across multiple deliverables. Experience with developing content for social media. Corporate Relations Development experience
Date Posted: 2024-09-06
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Flexible Schedule
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Virtual Opportunity
Organization Overview: Rare Genomics Institute (RGI) is a nonprofit organization dedicated to helping rare disease patients find a diagnosis, treatment, and pathway to a cure. Through personalized research projects, RGI provides access to world leading medical institutions and scientists to conduct genomic sequencing, coordinates with clinicians and counselors to interpret findings, and offers an online crowd-funding platform to deliver financial solutions. RGI also supports rare disease advocacy by fostering an online community of rare disease patients and supporting rare disease research through a yearly grant competition.Through volunteers, RGI is able to slowly push science and health care forward to meet the needs of patients affected by rare diseases. To learn more about RGI check out our website, like us on Facebook, and follow us on Twitter! Job Overview: As a pioneer in the rare disease space, RGI has been providing access to genomic sequencing services for patients with rare diseases since 2011. RGI is embarking on a new AI/ML innovation endeavor to develop an AI chatbot that provides personalized experiences for rare disease patients and advocates in multiple languages. This chatbot will utilize generative AI and large language models (LLMs) for users to experience real-time responses about rare diseases along with the associated management, treatment, and literature relating to them, based on verified information. We are looking for a motivated, talented Product Marketing Manager to join RGI as a volunteer on the AI/ML Innovation team. This role requires extensive experience developing comprehensive marketing campaigns with compelling messaging as well as creating content (e.g., social media, blog posts, case studies, patient advocacy stories) that aligns with key audiences. The successful candidate will work closely with members of the product development team to develop a marketing campaign that will encourage awareness and engagement of the rare disease AI chatbot. Key Responsibilities: Develop and Execute GTM Strategy: Lead the development of a comprehensive go-to-market (GTM) strategy, including positioning, messaging, and competitive analysis for an AI-driven genomics analysis platform aimed at providing personalized experiences for rare disease patients and their advocates. Craft clear, compelling, and differentiated messaging and positioning that resonates with key audiences, including healthcare providers, patients, advocacy groups, and industry partners. Work closely with the product management team to understand the technical details of the AI chatbot and translate them into customer-centric benefits. Content Creation and Management Assist in the creation of compelling content such as blog posts, case studies, social media content, and email campaigns to engage our target audience. Plan, develop, and execute multi-channel marketing campaigns that drive awareness, engagement, and adoption of the AI chatbot. Collaborate with the content and creative teams to produce high-quality marketing materials, including white papers, case studies, webinars, and social media content. Monitor and analyze campaign performance metrics, adjusting strategies as needed to optimize results. Partnership Outreach: Identify and engage with potential partners, advocacy groups, and media to amplify the reach and impact of the chatbot. Build and maintain relationships with key opinion leaders, patient advocacy groups, and healthcare providers to drive product adoption and gather feedback. Develop and execute strategies to engage and support the rare disease patient community through personalized experiences and educational content. Organize and participate in industry events, conferences, and webinars to promote the AI chatbot and its impact on rare disease care. Performance Tracking: Monitor and report on key performance metrics to measure the success of marketing efforts and inform future strategies. Conduct market research to understand the needs and challenges of rare disease patients, healthcare providers, and advocacy groups. Analyze market trends, customer insights, and competitor activities to inform product strategy and identify growth opportunities. Develop buyer personas and customer journey maps to guide product development and marketing efforts. Qualifications: Bachelor’s degree in Marketing, Business, Life Sciences, or a related field. 5+ years of product marketing experience, preferably in healthcare, biotechnology, or software industries. Proven experience in developing and executing go-to-market strategies for AI, machine learning, or genomics products. Strong understanding of AI and machine learning concepts, especially in the context of genomics and personalized medicine. Excellent written and verbal communication skills, with the ability to craft compelling messaging for diverse audiences. Strong analytical skills with the ability to interpret complex data and translate insights into actionable marketing strategies. Experience managing and executing marketing campaigns across multiple channels, including digital, print, and events. Ability to work collaboratively in a fast-paced, cross-functional environment. Preferred Qualifications: Master’s degree or MBA in Marketing, Business, or a related field. Experience in marketing products or services aimed at rare disease patients, healthcare providers, or advocacy groups. Familiarity with regulatory and compliance requirements in healthcare and genomics industries. Experience with customer journey mapping and creating personalized marketing experiences. Knowledge of patient advocacy landscape and experience building relationships with advocacy organizations. Proficiency in marketing automation tools, CRM systems, and analytics platforms (e.g., HubSpot, Salesforce, Google Analytics).
Date Posted: 2024-09-04
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Flexible Schedule
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Virtual Opportunity
We are looking for a motivated, talented volunteer to join RGI as a member of the AI/LM Innovation team. The Prompt Engineer will be responsible for creating, testing, and refining prompts used by LLMs to accurately map medical records to HPO terms. This role requires a deep understanding of natural language processing (NLP), strong analytical skills, and the ability to collaborate with cross-functional teams. The successful candidate will work closely with AI/ML specialists, bioinformatics scientists, and clinical data specialists to ensure the effectiveness of the prompts in improving the performance of our AI models. Key Responsibilities: Develop and optimize prompts to enhance the accuracy of LLMs in mapping medical records to HPO terms. Conduct experiments to test and refine prompts, using quantitative and qualitative metrics to assess performance. Collaborate with AI/ML specialists to integrate optimized prompts into the LLM training and deployment process. Analyze model outputs and feedback to identify areas for prompt improvement. Stay up-to-date with the latest advancements in NLP and LLMs, and apply these insights to improve prompt design. Document prompt development methodologies, experiments, and results to ensure reproducibility and transparency. Communicate findings and progress to stakeholders, including non-technical team members. Qualifications: Bachelor’s or Master’s degree in Computer Science, Linguistics, Computational Linguistics, or a related field. Proven experience in natural language processing and prompt engineering. Strong understanding of LLMs (e.g., GPT, BERT) and their applications in NLP tasks. Proficiency in programming languages such as Python and experience with NLP libraries (e.g., Hugging Face Transformers). Excellent analytical and problem-solving skills, with the ability to design and conduct experiments. Ability to work independently and collaboratively within a multidisciplinary team. Strong communication skills, with the ability to explain complex technical concepts to non-technical stakeholders. Preferred Qualifications: Experience in the healthcare or genomics industry. Familiarity with bioinformatics and medical terminologies. Publications or contributions to the field of NLP or LLM research.
Date Posted: 2024-10-07
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