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  • 19 people are interested
 

Grant Writing Specialist

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ORGANIZATION: Rare Genomics Institute

  • 19 people are interested

We are looking for a motivated, talented volunteer to join RGI as a member of the grant writing team. The Grant Writer will be responsible for researching, writing, and submitting grant proposals to secure funding for our large language model (LLM) enhanced genomics analysis project. In addition to researching and writing grants, you will help oversee the overall grant management process by tracking reporting deadlines and ensuring compliance with funding requirements.

This role requires excellent writing skills, a deep understanding of the grant application process, and the ability to articulate the significance and impact of our project. This position will report to the VP of Finance and work with the Project Lead, researchers, and development team to identify funding opportunities and submit compelling proposals.

You will work remotely and on your own schedule.

Responsibilities

  • Research and identify potential grant opportunities from foundations, government agencies, and other funding sources

  • Write, edit, and submit high-quality grant proposals, including narratives, budgets, and supporting documentation

  • Collaborate with professionals across RGI to gather necessary information and data for proposals

  • Ensure all grant applications comply with funder guidelines and requirements

  • Maintain a calendar of grant deadlines and ensure timely submission of all proposals

  • Track and report on the status of submitted proposals and funding received

  • Build and maintain relationships with grant-making organizations and funders

  • Assist with other fundraising and development activities as needed

Qualifications

  • Proven experience in grant writing and securing funding for nonprofit or research projects

  • Exceptional writing, editing, and proofreading skills

  • Advanced research skills and the ability to identify relevant, actionable grant opportunities

  • Ability to understand and communicate complex scientific and technical concepts to a general audience

  • Detail-oriented with the ability to ensure compliance with the terms and requirements of funding sources

  • Ability to improve the grant proposal process by anticipating potential objections and incorporating feedback

  • Ability to work independently and collaboratively within a multidisciplinary team

  • Proficiency in Microsoft Office Suite and grant management software

Preferred Qualifications

  • Experience in the healthcare, biotechnology, and/or life science space

  • Familiarity with the grant application processes of foundations and government agencies

  • Knowledge of budget preparation and financial reporting for grant proposals

This volunteer position is highly rewarding as professionals can utilize their grant writing experience to improve the lives of individuals living with rare diseases.

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About Rare Genomics Institute

Location:

8504 Firestone Blvd., #198, Downey, CA 90241, US

Mission Statement

At RG, we are more than just an organization. We are a community dedicated to helping rare disease patients find hope for a cure. We work alongside patients and their families, providing them with the necessary tools, knowledge, and connections so that they can better understand the cause of their disease. We believe that every patient deserves more out of life.

Description

Rare Genomics Institute (RGI) is a nonprofit organization dedicated to helping rare disease
patients find a diagnosis, treatment, and pathway to a cure. Through personalized research
projects, RGI provides access to world leading medical institutions and scientists to conduct
genomic sequencing, coordinates with clinicians and counselors to interpret findings, and offers an
online crowd-funding platform to deliver financial solutions. RGI also supports rare disease
advocacy by fostering an online community of rare disease patients and supporting rare disease
research through a yearly grant competition.

Since being founded in 2011, RGI has completed over 300 genetic sequencing and analysis
projects, assisted patients fund over $3.5 million worth of genomic sequencing, discovered 8
unique genetic mutations in-house, given over $2 million dollars in grants to researchers on rare
disease, and developed an online community with over 10,000 rare disease members.
Through volunteers, RGI is able to slowly push science and health care forward to meet the needs
of patients affected by rare diseases. To learn more about RGI check out our website, like us on
Facebook, and follow us on Twitter!

CAUSE AREAS

Children & Youth
Community
Health & Medicine
Children & Youth, Community, Health & Medicine

WHEN

We'll work with your schedule.

WHERE

This is a Virtual Opportunity with no fixed address.

SKILLS

  • Grant Writing / Research

GOOD FOR

N/A

REQUIREMENTS

  • 5-10 hours per week

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