Children's Cardiomyopathy Foundation

Cause Area

  • Children & Youth
  • Health & Medicine

Location

24 West Railroad Ave.Suite 408Tenafly, NJ 07670 United States

Organization Information

Mission Statement

The vision of the Children's Cardiomyopathy Foundation (CCF) is to create a future of hope in which cardiomyopathy is detected earlier, more lives are saved, and all children with the disease can live full and active lives. CCF's mission is to accelerate the search for causes and cures for pediatric cardiomyopathy through increased research, education, awareness, advocacy, and support to affected children and their families.

Description

The Children's Cardiomyopathy Foundation (CCF) is a non-profit organization focused on pediatric cardiomyopathy, a chronic and potentially life-threatening heart disease. It is a condition that is not well known or well understood even though it is a leading cause of heart transplants and sudden cardiac arrest in children.

CCF was established in 2002 as a 501(c)(3) public charity to meet the critical need for more awareness, education, and research on pediatric cardiomyopathy. Over the years, CCF has grown into a global community of families, physicians, and scientists focused on improving diagnosis, treatment, and quality of life for children with cardiomyopathy. CCF is committed to serving the needs of both the patient and the medical community with its mission of accelerating the search for causes and cures for pediatric cardiomyopathy through increased research, education, awareness, advocacy, and support for affected children and their families.

Reviews

Would you recommend Children's Cardiomyopathy Foundation?
3 reviews Write a review
by patricia d. (2017-08-02 05:22:47.0)
I have a 15 years old daughter with this problem She had a heart transplant 4 years ago! She never had any symptoms until July of 2012 Went after run to many Drs discovered that she had cardiomyopathy !! On dic 1 of the same year she had her transplant! Is for that We need more research and more information about this terrible condition!!
by Wannesia W. (2011-08-28 06:15:17.0)
Hello, Any time we can work towards prevention of any disease it is a good thing.

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