CYFIP2 NETWORK INC

Cause Area

  • Board Development
  • Children & Youth
  • Community
  • Employment
  • Health & Medicine

Location

331 ASHEFORD WAYCAMERON, NC 28326 United States

Website:

https://www.cyfip2network.org/
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Organization Information

Mission Statement

Our mission is to raise awareness and support children, families and researchers of CYFIP2 Early Infantile Epileptic Encephalopathy.

Description

At 2 months old, our son was diagnosed with CYFIP2 Early Infantile Epileptic Encephalopathy (EIEE). Since then, we’ve been working towards raising awareness and fundraising to support research for the development of treatments that target the CYFIP2 gene.

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