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NEEV KOLTE & BRAVE RONIL FOUNDATION

Cause Area

  • Children & Youth
  • Health & Medicine

Location

3677 DUNSMUIR CIRPLEASANTON, CA 94588 United States

Organization Information

Mission Statement

We support kids impacted by DIPG/DMG pediatric brain cancer. Our mission includes helping sponsor novel cutting-edge research, and clinical trials anywhere in the USA, advocacy at all levels of government, raising childhood cancer awareness in the community, access to care, data use, and integration. Assisting patients and those who provide services to patients or their family members in California.

Description

Two families residing in the San Francisco Bay Area were struck by a profound tragedy-both of their sons were diagnosed with DIPG, a terminal form of pediatric brain cancer, and were given a mere nine months to live. Confronted by this heart-wrenching ordeal, the families of Manisha and Milan, alongside Misha and Sandeep, embarked on an agonizing journey through their darkest days, ultimately enduring the shattering heartbreak of losing their cherished sons, Neev at the tender age of 7 and Ronil at the age of 14.

United by their shared sorrow, these families found solace in each other’s presence when Neev’s diagnosis was still fresh in 2020, while Ronil had passed away two years prior. Their collective strength gave rise to the Neev Kolte & Brave Ronil Foundation in 2022, a tribute to the legacies of their precious sons, driven by a strong determination to reshape the lives of future families confronted by the terrible reality of DIPG. Their commitment and dedication is to help children affected by DIPG brain cancer, sponsoring groundbreaking research, clinical trials, awareness building, advocacy, facilitating care access, data integration, and providing family support.

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