CURE POGZ DISORDERS FOUNDATION INC

Cause Area

Advocacy & Human Rights
Community
Health & Medicine

Location

2309 AIMEE LNSCHAUMBURG, IL 60194 United States

Website:

https://www.curepogzdisorders.org

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Website:
https://www.curepogzdisorders.org

Active Opportunities (4)

Graphic Designer Needed

2024-09-23 - 2024-10-31 | Virtual Opportunity

Looking for a graphic designer to enhance the logo and banner for "Cure Pogz Disorders Foundation". https://curepogzdisorders.org Please reach out if interested.

Date Posted: 2024-09-29
Board Development - Digital Marketing Expert

2024-10-07 - 2024-11-29 | Virtual Opportunity

The 'Cure Pogz Disorders Foundation’ ( CPDF) Mission is to urgently improve the lives of individuals and families affected by POGZ gene disorders by funding and accelerating cutting-edge science to discover treatments integral to our Path to Cure. Visit https://curepogzdisorders.org to learn more about our organization and the difference we want to make by saving lives. CPDF is looking for a creative, data-driven digital marketing expert with experience in setting up and running marketing campaigns for fundraising across various channels. This person will serve as a non-voting member in the Board of Directors. Understand content marketing strategies and create content to push through email newsletters, facebook and instagram for brand awareness and fundraising Strong grasp of current marketing tools and strategies and be able to lead integrated digital marketing campaigns from concept to execution. Plan and execute all digital marketing activities, good knowledge of fund raising CRM platforms like 'Give Butter' to send email news letters. Responsible for tracking key marketing analytics and key metrics Collaborate with the SEO expert who is a part of the organization as needed Thank you in advance...

Date Posted: 2024-10-06
Video Editor for Fundraising Campaign

2024-09-30 - 2024-11-29 | Virtual Opportunity

CPDF is in need of a 'video editor' to weave a visual story together. Video segments and script delivery are already done, need someone who can attach the video segments together, add patient journey photos (will be provided), add audio and create an emotional connection with the audience through a 2-3 min visual story telling. Looking for a creative mind to weave this story together as this will be used in presenattions, on the website, scoial media and fund raising campaigns. Please see the long narrative here https://www.curepogzdisorders.org/our-story-1

Date Posted: 2024-09-30
Board Development - Accountant

2024-09-16 - 2024-10-31 | Virtual Opportunity

CPDF is looking for a volunteer who can serve as a the Director- Finance as a part of the board. The responsibilities would be financial reporting and book keeping, tax preparation and compliance, auditing and ensuring regulatory compliance with state laws.

Date Posted: 2024-09-12

Organization Information

Mission Statement

Our mission is to urgently improve the lives of individuals and families affected by POGZ gene disorders by funding and accelerating cutting-edge science to discover treatments integral to our Path to Cure

Description

The Cure Pogz Disorders Foundation (CPDF) is a parent-led global organization driving the research to cure POGZ related neurodevelopmental disorders while supporting and advocating for patients and families.

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CURE POGZ DISORDERS FOUNDATION INC

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