EDS West Connect is dedicated to the empowerment & protection of people with Ehlers Danlos Syndrome, by providing valuable education, outreach and advocacy to patients and their support networks so that people with EDS can do more than just survive, they can thrive.
The founders have been doing advocacy and education for over a decade but we finally became an official 501c3 in spring of 2023! We have a small Board of Directors but we need more. We serve the Los Angeles, Ventura & Santa Barbara counties in Southern California with hope of expanding as we go. We have fundraising goals and outreach goals. We need to develop our programs. We need a Treasurer. We need a volunteer Grant Writer. We need volunteers to help with many tasks to help us get off the ground. We are reaching around 3000 per month on our social media platforms so far.
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