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4 people are interested
MPS Jingle Bell Run
ORGANIZATION: NATIONAL MPS SOCIETY INC
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Please visit the new page to apply.
Please visit the new page to apply.
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4 people are interested
The National MPS Society is seeking volunteers to assist with our MPS Jingle Bell Run on Friday, December 20 2024. This 5K Run and 1-Mile Family Walk will be held at Bill Frederick Park (Pavilion 6), with same-day registration for the race beginning at 7:00 AM. At the conclusion of the race, there will be a Family Picnic. All funds raised from the MPS Jingle Bell Run will go towards research for MPS and ML, genetic lysosomal storage disorders that are diagnosed at birth and often lead to a shortened life span.
We will need help setting up the event, placing signs, running the picnic lunch, and more. Thank you very much for your support of the Society! If you have any questions about this event, please email Bethany at bethany@mpssociety.org.
To learn more about the MPS Jingle Bell Run, please visit the registration website: https://nationalmpssociety.redpodium.com/2024-jingle-bell-5k
To learn more about MPS and ML, please visit our website: mpssociety.org.
More opportunities with NATIONAL MPS SOCIETY INC
No additional volunteer opportunities at this time.
About NATIONAL MPS SOCIETY INC
Location:
PO BOX 14686, DURHAM, NC 27709, US
Mission Statement
The National MPS Society exists to find cures, support and advocate for MPS and ML.
Description
Mucopolysaccharidoses (MPS) and related diseases are genetic lysosomal storage diseases (LSD) caused by the body's inability to produce specific enzymes. Normal ly, the body uses enzymes to break down and recycle materials in cells. In individuals with MPS and related diseases, the missing or insufficient enzyme prevents the proper recycling process, resulting in the storage of materials in virtually every cell of the body. As a result, cells do not perform properly and may cause progressive damage throughout the body, including the heart, bones, joints, respiratory system and central nervous system. While the disease may not be apparent at birth, signs and symptoms develop with age as more cells become damaged by the accumulation of cell materials.
CAUSE AREAS
Children & Youth,
Health & Medicine,
People with Disabilities
WHEN
Fri Dec 20, 2024
06:30 AM - 12:00 PM
WHERE
3401 South Hiawassee RoadPavilion 6Orlando, FL 32835
(28.507107 ,-81.48389 )
DATE POSTED
December 18, 2024
SKILLS
GOOD FOR
N/A
REQUIREMENTS
- Must be at least 18
- 6 Hours