• 3 people are interested
 

Social Media Community Manager

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ORGANIZATION: Rare Genomics Institute

  • 3 people are interested

Rare Genomics Institute (RG) is a nonprofit organization that helps families in need of genome research. The role will work remotely with talented peers to do good for the rare disease community. The social media community manager will assist with content creation, utilizing Canva to create colorful illustrated posts, and starting a new RG Instagram account.

The social media community manager will also serve as our ambassador and should be well-versed in social media best practices. The role will require experience using social networking sites such as linkedin, facebook, instagram, and X. The manager will post event information, publicize RG’s activities and publish content related to our mission. The role will require skill at writing and creating content that engages and inspires online users. You must be able to think strategically and have a passion for innovation and social impact! The goal is to reach a wider audience and to help establish RG’s new Instagram account.

Responsibilities:

  • Utilizing Canva to generate visually appealing, compelling, and colorful content or Instagram.

  • Developing and maintaining social media strategies and integrated marketing campaigns that aim to increase brand visibility and traffic across all social platforms.

  • Creating social media content; managing the growth and development of our social properties.

  • Participate in online conversations.

  • Posting regularly on social media.

  • Monitor trends in social marketing tools, trends and applications and appropriately apply that knowledge to support our online campaigns

  • Stay informed about new sites and trends in how people get information

  • Measure the impact of social media on the overall marketing efforts

  • Attend weekly evening team teleconference call (Tuesdays, 9:00-10:00 PM EST).

Desired Skills and Experience:

  • A degree in marketing/communications, business management, biomedical science or a related discipline are preferred.

  • Knowledgeable in navigating social media sites.

  • Excellent organizational skills and ability to manage multiple projects efficiently.

  • Excellent oral and written communication skills for effective communication to clients, internal staff and the management team.

  • Ability to demonstrate tact, diplomacy and initiative when working with others.

  • Passion for learning and serving rare disease communities.

  • Able to thrive in a fast-paced, self-starter environment.

  • Dependable in serving as a regular spokesperson for the organization over a sustained period of time.

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About Rare Genomics Institute

Location:

8504 Firestone Blvd., #198, Downey, CA 90241, US

Mission Statement

At RG, we are more than just an organization. We are a community dedicated to helping rare disease patients find hope for a cure. We work alongside patients and their families, providing them with the necessary tools, knowledge, and connections so that they can better understand the cause of their disease. We believe that every patient deserves more out of life.

Description

Rare Genomics Institute (RGI) is a nonprofit organization dedicated to helping rare disease
patients find a diagnosis, treatment, and pathway to a cure. Through personalized research
projects, RGI provides access to world leading medical institutions and scientists to conduct
genomic sequencing, coordinates with clinicians and counselors to interpret findings, and offers an
online crowd-funding platform to deliver financial solutions. RGI also supports rare disease
advocacy by fostering an online community of rare disease patients and supporting rare disease
research through a yearly grant competition.

Since being founded in 2011, RGI has completed over 300 genetic sequencing and analysis
projects, assisted patients fund over $3.5 million worth of genomic sequencing, discovered 8
unique genetic mutations in-house, given over $2 million dollars in grants to researchers on rare
disease, and developed an online community with over 10,000 rare disease members.
Through volunteers, RGI is able to slowly push science and health care forward to meet the needs
of patients affected by rare diseases. To learn more about RGI check out our website, like us on
Facebook, and follow us on Twitter!

CAUSE AREAS

Children & Youth
Health & Medicine
Children & Youth, Health & Medicine

WHEN

We'll work with your schedule.

WHERE

This is a Virtual Opportunity with no fixed address.

SKILLS

  • Marketing & Communications (Mar/Com)
  • Public Relations
  • Brand Development & Messaging
  • Interactive/Social Media/SEO
  • Social Media / Blogging
  • Content Management Systems

GOOD FOR

N/A

REQUIREMENTS

  • 5 hours per week

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