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  • 14 people are interested
 

Volunteer Trustee Board Administrator

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ORGANIZATION: Mast Cell Action

  • 14 people are interested

Are you passionate about helping those affected by mast cell diseases? Do you have excellent organisational skills and a keen eye for detail? Mast Cell Action is looking for a dedicated Trustee Board Administrator to help support our important work!

Mast Cell Action is a UK charity that supports individuals affected by Mast Cell Activation Syndrome (MCAS). We aim to raise awareness, advocate for improved diagnosis and treatment, and provide support to those impacted. Our Trustee Board oversees the strategic direction and governance of the charity.

Role Overview:

As a Trustee Board Administrator, you will play a key role in ensuring the smooth and efficient operation of our Trustee Board. Your work will directly support the charity's mission to improve the lives of those living with mast cell diseases.

Key Responsibilities:

  • Organise and schedule trustee board meetings.
  • Prepare, circulate, and archive meeting agendas, minutes, and related documents.
  • Assist with governance and compliance matters.
  • Ensure accurate record-keeping of board decisions and discussions.
  • Provide general administrative support to the board.

Who We’re Looking For:

  • Excellent organisational skills and attention to detail.
  • Strong written and verbal communication abilities.
  • Previous experience with minute-taking or document management
  • Ability to work independently and efficiently meet deadlines.
  • A commitment to supporting those affected by mast cell diseases.
  • Knowledge of charity governance (beneficial but not required).

What You’ll Gain:

  • Experience in charity governance and nonprofit leadership.
  • A chance to make a real difference in the lives of those affected by rare diseases.
  • Opportunities to connect with leaders in the healthcare and charity sectors.
  • Flexibility to work remotely, allowing for a balance with your other commitments.

You will need to have availability on Thursday afternoons for bi-monthly 2hr meetings.

How to Apply:

If you're ready to contribute your skills to help Mast Cell Action grow, we’d love to hear from you!

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About Mast Cell Action

Location:

6 Willes Terrace, Leamington Spa, Warwickshire, cv31 1dl, GB

Mission Statement

Our vision is to ensure that everybody suffering from MCAS in the UK receives adequate support, can expect knowledgeable diagnosis & care, and can look to a future in which the disease is actively researched, better understood and more effectively treated. In sum we aim to improve the lives of MCAS sufferers by giving them a voice, recruiting and supporting doctors & researchers, and lobbying policy-makers.

Description

We are a rare diseases charity established at the end of 2015 to respond to Mast Cell Activation Syndrome (MCAS). MCAS is a crippling, unpredictable and frightening condition affecting the immune system. Sufferers from MCAS have "wrongly programmed" immune systems that react to a wide range of triggers including food, drink, stress, temperature and many others. The effects range from unpleasant allergic reactions, through to an overall debilitation resulting in people being unable to leave their houses. It was first recognised internationally in 1990, with a set of diagnostic criteria agreed in 2011, but is little known or understood in the UK, where incidence seems to be increasing. Here patients can wait 3-5 years for a diagnosis, often receive very little knowledge or help from within the medical establishment and can find themselves in a frightening limbo. (More on the disease can be found on our website: www.mastcellaction.org or on Facebook

CAUSE AREAS

Computers & Technology
Computers & Technology

WHEN

We'll work with your schedule.

WHERE

This is a Virtual Opportunity with no fixed address.

SKILLS

  • Executive Admin
  • Administrative Support
  • Customer Service

GOOD FOR

N/A

REQUIREMENTS

N/A

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