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Outreach Liaison

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ORGANIZATION: CURE BLAU SYNDROME FOUNDATION

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As an Outreach Liaison for A Million Acts of Love, you will play a vital role in expanding the reach of our kindness campaign by connecting with local schools, businesses, community groups, and organizations to inspire participation. Your work will directly contribute to raising awareness about numerous social issues, as each act of kindness can focus on any social cause. Overall, the campaign helps highlight rare diseases, grief support, and the power of kindness, helping us reach our goal of one million acts of love by December 16, 2024. This is an exciting opportunity to be the face of our movement within your community and make a tangible impact by fostering collaboration and engagement.

Key Responsibilities

1. Develop Partnerships: Reach out to local schools, businesses, and community organizations to encourage their involvement in the campaign.
2. Promote the Campaign: Share information about the campaign’s mission and goals with potential partners, encouraging them to sign up and spread kindness. Encourage partners to collaborate as affiliates and have their communities contribute acts of kindness.
3. Coordinate Events (Optional): Help organize community outreach activities or small events to spread awareness and inspire participation in A Million Acts of Love.
4. Track Participation: Ensure that individuals and groups sign up for the campaign so their acts of love are officially counted toward our one million goal.
5. Share Resources: Provide promotional materials such as posters, social media graphics, or brochures to help partners promote the campaign within their networks.
6. Represent the Campaign: Serve as a key ambassador for A Million Acts of Love, speaking passionately about our mission and fostering lasting relationships with community stakeholders.

Skills and Qualifications
1. Excellent communication and interpersonal skills
2. Ability to build and maintain relationships with diverse community groups 3. Self-motivated with strong organizational skills
4. Passionate about making a positive impact and engaging with the community
5. Experience in outreach, marketing, or partnership development (preferred but not required)
6. Comfortable using email and social media for outreach
7. Benefits to You Make a real difference by helping raise awareness for a wide range of social causes-an opportunity to focus on areas you’re most passionate about
8. Contribute to raising awareness about rare diseases and supporting families affected by grief
9. Gain valuable experience in community outreach, networking, and event coordination
10. Be part of an inspiring and supportive team, driven by a meaningful cause
11. Earn volunteer hours and receive a reference letter

5 More opportunities with CURE BLAU SYNDROME FOUNDATION

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About CURE BLAU SYNDROME FOUNDATION

Location:

17460 BRISTLECONE LN, YORBA LINDA, CA 92886, US

Mission Statement

The mission of A Million Acts of Love is to inspire and empower individuals to spread kindness, raise awareness for rare diseases like Blau syndrome, and support families affected by grief. Felix Townsin’s early fundraising efforts--beginning at age five when he wrote a book to raise money for medical research--led to the creation of the Cure Blau Syndrome Foundation, which was started to fundraise for a cure for his sister Lexi. A Million Acts of Love builds on this legacy, aiming to inspire one million acts of kindness by December 16, 2024, highlighting the resilience of rare disease warriors like Lexi and creating lasting positive change in communities around the world.

Description

A Million Acts of Love was started by Felix, who has dedicated his life to raising awareness for rare diseases and spreading kindness in memory of his sister, Lexi. Felix’s journey began at the age of five when he wrote a book to fundraise for medical research, ultimately leading to the creation of the Cure Blau Syndrome Foundation.

After Lexi’s passing, Felix continued his advocacy, speaking at medical conferences around the world and raising over $100,000 for rare disease research. His most ambitious project to date, A Million Acts of Love, aims to inspire one million acts of kindness by December 16, 2024-what would have been Lexi’s 12th birthday. This campaign encourages individuals, families, and communities to participate in acts of love, from volunteering to supporting local causes, all while raising awareness for rare diseases and grief support.

In addition to inspiring kindness, A Million Acts of Love includes the Lexi’s Legends initiative, which provides grants and funding to young changemakers who want to start their own social projects. Felix’s efforts have already inspired tens of thousands of acts of love and connected the rare disease community globally, creating a ripple effect of kindness and hope.

We invite volunteers to join us in spreading love and making a positive impact, whether through mentoring, social media, outreach, or other opportunities. Together, we can help Felix reach his goal and continue Lexi’s legacy of compassion.

CAUSE AREAS

Advocacy & Human Rights
Children & Youth
Health & Medicine
Advocacy & Human Rights, Children & Youth, Health & Medicine

WHEN

We'll work with your schedule.

WHERE

This is a Virtual Opportunity with no fixed address.

SKILLS

GOOD FOR

  • Kids
  • Teens
  • People 55+
  • Public Groups
  • Private Groups

REQUIREMENTS

N/A

Private Group Details

  • Group Size Range 1 - 50+
  • Event can be held virtually
  • No Donation

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