This event is our largest fundraiser and helps us to improve the lives of individuals and families with bleeding disorders like hemophilia and von Willebrand disease. Bleeding disorders are a variety of disorders where the blood is not able to form a clot, causing painful internal bleeding and other complications. Proceeds from the Family Festival & Walk fundraiser support programs and services for the bleeding disorders community, including emergency assistance, medical IDs, scholarships, support groups, education, and more. At the Family Festival & Walk, there will be fun activities, awards, and a walk to help raise money and awareness of bleeding disorders.
No additional volunteer opportunities at this time.
260 Town Hall Drive, Suite A, Morrisville, NC 27560, US
Hemophilia of North Carolina is a non-profit organization whose goal is to assist, involve and educate persons affected by bleeding disorders. We promote opportunities for improving the quality of life for persons with hemophilia and all bleeding disorders in the state of North Carolina.
Hemophilia of North Carolina is a non-profit 501c3 organization which has been assisting the bleeding disorders community in the state for over 30 years. We are members of the National Hemophilia Foundation, Hemophilia Federation of America, Community Health Charities of North Carolina and the NC Center for Nonprofits. We support families and individuals through ongoing educational programs, peer support groups, patient advocacy, emergency financial assistance, scholarships and summer camps for our children.
Hemophilia is a genetically transmitted bleeding disorder in which the blood does not clot normally. There is no cure for hemophilia. While treatment exists for most forms of the disease, it is costly and may require lifelong infusions of replacement clotting factor. In about 1/3 of cases there is no know prior family history of hemophilia. Rather the disorder results from a spontaneous genetic mutation.
The bleeding disorders community was devastated in the late 80's when the nation's blood supply became contaminated by the HIV virus. Over 90% of Americans with severe hemophilia became infected with AIDS and more than 50% of those infected have died. Through the advocacy efforts of those in the hemophilia community, laws were passed and continue to be in effect to make sure the nation's blood supply remains safe to all Americans. Members of the community and their national organizations continue to remain vigilant in tracking the collection and processing of the blood supply in this country.
The most common bleeding disorder in women is von Willebrand disease. According to recent guidelines released by the National Heart Lung and Blood Institute, up to 1% of the population is affected and most don't even know it.
For more information about Hemophilia of North Carolina and how you can help, please contact us. Together we can make a difference!
Mint Street at 3rd & MLK Blvd. - Charlotte, NCCharlotte, NC 28202
April 15, 2024
