Scleroderma United Team Member

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We are accepting team member applications for the following:

• Interview Board
• Editing Board
• Design Board
• Education Board
• Relations Board

Learn more and apply here: tinyurl.com/sclerounitedAPPLY

INTERVIEW BOARD - Interview Board Members find and interview patients for Scleroderma Stories, our publication that sheds light on the hardships and passions of scleroderma warriors around the world. On this team, you’ll engage directly with patients by conducting outreach and interviews before collaborating with Scleroderma United’s Editing Board to publish their stories.

Scleroderma United prides itself on enabling everyone to contribute to our mission of connecting and empowering scleroderma warriors. While the following skills are ideal, we will teach you everything you need to know. We are also more than happy to adjust your role to accommodate any needs (e.g. medical)

• Use of social media and online resources to conduct outreach
• Ability to converse empathetically with patients
• Interview skills
• Strong interpersonal skills

EDITING BOARD - Editors take patient interviews and transform them into true Scleroderma Stories! The Editing Team will use transcription software to convert recorded interviews to text before editing the content to clearly and compellingly tell the scleroderma warrior’s story. After finalizing the content, Editors will assist the Design Board as they format the interview into the final publication.

Scleroderma United prides itself on enabling everyone to contribute to our mission of connecting and empowering scleroderma warriors. While the following skills are ideal, we will teach you everything you need to know. We are also more than happy to adjust your role to accommodate needs (e.g. medical)

• Strong writing skills
• Attention to detail
• Passion for storytelling

DESIGN BOARD - Design Board Members will format Scleroderma Stories into a visually-appealing, magazine-style publication. The Design Board will have access to Scleroderma United’s Canva Premium account and utilize this software to create the final Scleroderma Stories publication.

Scleroderma United prides itself on enabling everyone to contribute to our mission of connecting and empowering scleroderma warriors. While the following skills are ideal, we will teach you everything you need to know. We are also more than happy to adjust your role to accommodate any needs (e.g. medical)

• Canva or other design skills
• Attention to detail

EDUCATION BOARD - Education Board Members will curate and launch Scleroderma United’s new Patient-Led Education Program, which will foster a community of mutual learning. The Education Board will recruit and guide patients to create content that shares their personal experiences with accessibility aids, renal diets, navigating the health system, and more. On this team, you’ll play a key role in broadening patient access to knowledge - an especially crucial need for rare diseases such as scleroderma.

Scleroderma United prides itself on enabling everyone to contribute to our mission of connecting and empowering scleroderma warriors. While the following skills are ideal, we will teach you everything you need to know. We are also more than happy to adjust your role to accommodate any needs (e.g. medical)

• Use of social media and online resources to conduct outreach
• Ability to collaborate and work empathetically with patients
• Strong writing or video editing skills

RELATIONS BOARD - Relations Board Members manage Scleroderma United’s social media operations, website development, and community/partner outreach. The Relations Board will be passionate about improving the organization’s internal and external relationships, pay great attention to detail, and utilize their creativity to help Scleroderma United’s work impact a broader audience.

Scleroderma United prides itself on enabling everyone to contribute to our mission of connecting and empowering scleroderma warriors. While the following skills are ideal, we will teach you everything you need to know. We are also more than happy to adjust your role to accommodate any needs (e.g. medical)

• Instagram and Facebook management
• Content planning
• Wordpress
• Partnership coordination
• Strong interpersonal skills