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Cornelia de Lange Syndrome (CdLS) Foundation, Inc.

Cause Area

  • Children & Youth
  • Health & Medicine
  • People with Disabilities

Location

302 West Main Street, #100Avon, CT 06001 United States
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Organization Information

Mission Statement

The Cornelia de Lange Syndrome Foundation is a family support organization which exists to ensure early and accurate diagnosis of CdLS, promote research into the causes and manifestations of the syndrome, and help people with CdLS and others with similar characteristics make informed decisions throughout their lifetime.

Description

The CdLS Foundation is a family support organization offering toll free help lines, annual conferences, a medical advisory committee, and a bimonthly newsletter.

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